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  • Jett Foundation Inc

    • Non-Profit Organizations
    • South Shore Young Professionals Members
    68 Evergreen Street
    Suite 1
    Kingston, MA 02364
    (781) 585-5566
    Hours:
    9am-5pm

    About Us

    Since 2001, Jett Foundation has met the needs of the Duchenne muscular dystrophy community. Duchenne is the most common lethal genetic disorder of children worldwide. It is a progressive neuromuscular read more
    • About

      Since 2001, Jett Foundation has met the needs of the Duchenne muscular dystrophy community. Duchenne is the most common lethal genetic disorder of children worldwide. It is a progressive neuromuscular disorder that causes the loss of muscle function and independence. Most children are diagnosed around kindergarten, many will stop walking before high school, and few will celebrate their 25th birthday. There are approximately 20,000 patients in the United States living with Duchenne.

      While we were founded out of one family’s desperate need to save their son, we have transformed dramatically. Once an advocacy organization, today we are meeting our families and young people where they are with direct service programs. Through our national Educational Roundtable program, we empower patients and families affected with Duchenne with the knowledge, education, and support needed to become their own best advocates, to seek out the highest standard of care, the most promising clinical trials and scientific advancements, and the most cutting-edge and innovative treatments available. Through our direct service programs, such as Camp Promise – which is open to young people with any neuromuscular disorder – we provide children and young adults with the opportunity to experience a fun and carefree environment. Kids get to “just be kids” while parents and caregivers are given a much-needed week of respite.

    • Media

    • Whom to Contact

      • Gabriella Diniz
        Marketing and Communications Manager
      • Amy Walsh